1 day Old
1 month Old
Timothy has all of the anomalies in VACTERL.
V- Vertabraes (Fused Vertebraes, Scoliosis)
A- Anal Atresia
C-Cardiac (ASD closed on it's own, VSD almost closed, coarctation of the
Aorta)
T/E-Tracheal-Esophageal Atresia
R- Renal (Pelvic Kidney, and grade 4 reflux)
L- Limbs (Club Feet)
This is the rundown of all his medical problems:
*Vesicoureteral Reflux
*Tethered Cord
*Esophageal Reflux
*Congenital Malformations
*Vetricular Septal Defect
*Cerebral Palsy Quadriplegic w/Spasticity
*Constipation
*Developmental Disorder- Language (expressive)
*Failure to Thrive
*Craniosynostosis
*Bronchopulmonary Dysplasia
*Esophageal Stricture
*Upper Gastrointestinal Bleeding
*Hydro nephrosis
*Congenital Ear Deformity
*Congenital Knee and Hip Dislocation
*Skull Deformity
*Extra Set of Ribs
In September 2004, he was diagnosed with Cerebral Palsy
In March of 2005, he was diagnosed with Epilepsy. (resolved
12/08)
In October of 2006, he was diagnosed with Hearing Loss in his right ear.
In May of 2011, he was diagnosed with Dyslexia.
In December 2012, he was diagnosed with Anxiety.
**Timothy's Surgeries So Far**
He's had 23, but can't remember them all
*September 24, 2002
G-tube Placement
Colostomy, And Repair Of Duodenal Atresia
*October 2002
Coarctation Of The Aorta
*October 2002
Tracheostomy Placement
*December 2002
Repair Of Esophageal Atresia
*January 2003
Nissen Fundoplication
*March 4,2003
Repair Of Tracheal Cleft
*June 2003
Anal Plasty
*October 2003
Colostomy Take-down
*November 8, 2003
Grannuloma Removed From Airway
*January 12, 2004
Fixed His Undescended Testicle
*January 18, 2004
Grannuloma Removed From Airway
*October 3, 2005
Tubes In Ears, Tonsils & Adenoids
*October 31, 2005
Disimpaction, and Colostomy Placement (again!)
*March 2006
Dialation of Esophagus
*February 13, 2007
Ear Tubes Replacement
*April 30, 2008
Tether Cord Release
*August 28, 2008
Suprapubic Catheter Placement
*September 1, 2008
Ear Tubes Replacement
*March 6, 2009
Feet Surgery
* August 2, 2012
Trach Removal (after 9 years & 8 months!)
*June 13, 2013
Stoma Closed
Timothy was born September 23, 2002 at
1:09pm at the National Naval Medical Center in Bethesda Maryland.
Like many other Moms who have kids
with Vacterl/Vater I had a "normal" pregnancy. We never knew anything was wrong with Tim until a few days before
he was born, and even than we never knew how serious his problems were. I got admitted to the hospital on a Friday,
I was just coming in for level II ultrasound and started having contractions. The doctor couldn't do the ultrasound, but he
told us he thought Timothy had down syndrome, and told us "it was too late to terminate even if we wanted to" We
then knew something was REALLY wrong! He wasn't able to see his heart either since my contractions wouldn't stop I
got admitted then, and was in labor for 90+ hours Timothy was born on Monday (finally!) at 1:09pm. I ended up having
to have an Emergency C-section because his heart wasn't tolerating labor. At the time when he was born he wasn't responding
and was hardly breathing so he had to go on a ventilator .
I didn't get to see my
Son until the next day when he was getting ready to be transported to Childrens Medical Center in Washington DC to
have his g-tube placement, colostomy, and repair of duodenal atresia. Sometime in October 2002 he had his coarctation of the
aorta done too. Tim spent 3 weeks at Childrens and then got to go back to Bethesda where we stayed for
about a month or so, and finally we were sent to Walter Reed Army Medical Center where we spend 2 months .
I was really happy we were able to go there because I was able to stay with him at all times. Walter Reed became my HOME!
I lived there with Timothy the entire 2 months he was there. Our house is about an hr away from the hospital so we were
only able to see Tims dad on the weekends.
We finally came home January 16th, 2003 we
had dreamed of this day for months, and we couldn't believe it was actually here! I was so happy and at the same time
so nervous, and scared. We had nurses at home (not that it was a good thing... TRUST me! It was a nightmare having them
here, but that's another story) 10 hrs later his lung collapsed so we were flown to Childrens since at Walter Reed
there was going too much going on... PRESIDENT BUSH WAS VISITING!!! As you can imagine security was tight and to
be able to get in the hospital was.... well, I'm sure you can imagine... it's the president!! Everyone was late, and
we couldn't get a hold of Tims doctor to admit him there, so we were sent to Childrens down in DC (thank goodness noone
important was visiting there!) :) We spend a week there, and then back to WRAMC for a couple more days before we got to come
back home again! Since then (Thank God) Timothy has been doing GREAT!
